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Our Scientific Program
Program Schedule
10 May 2026 – Day 1
Research Integration and Global Innovation
Focuses on advancing scientific research and global collaboration in Fragile X and related neurogenetic conditions. The program highlights recent discoveries in molecular genetics, emerging therapeutic approaches, and international research initiatives, bringing together researchers, clinicians, and scientists to exchange knowledge and strengthen global partnerships.
- Research Integration and Global Innovation
- Starts from 08:00 AM
Time | Session |
8:00 AM | Registration & Coffee Break |
9:00 AM | Welcome Remarks |
9:30 AM | Keynote Speakers: 1. “Fragile X Spectrum Disorders and new Treatments” – Dr. Randi Hagerman, MD, FAAP 2. “Molecular/ Genetic Insights: Fragile X Premutation- Associated Conditions (FXPAC)” – Dr. Paul Hagerman, MD, PhD 3. “Molecular Biomarkers of FXTAS – Dr. Flora Tassone, PhD 4. Genetic Research in Africa (GEN-IMPACT vision) Dr. Mohamed Salama, PhD |
11:30 AM | “Navigating Fragile X: A Genetic Counselor’s Perspective on Inheritance, Cascade Testing, and the Multigenerational Family Impacts” – Susan Howell, MS, CGC, MBA |
12:00 PM | Lunch |
1:00 PM | 20-minute talks (To be posted soon) |
2:00 – 3:00 PM | Poster Session |
Keynote Speaker
11 May 2026 – Day 2
Education & Public Health Strategies
Emphasizes education, advocacy, and public health approaches for Fragile X and neurodevelopmental conditions. Sessions explore regional perspectives, patient advocacy, and strategies to improve access to services and support systems, supporting translation of research into effective public health and educational practice.
- The American University in Cairo – Conference Center
- Starts from 08:00 AM
Time | Session |
8:00 AM | Networking & Coffee Break |
9:00 AM | Keynote Speakers: Neurodevelopmental Conditions in Egypt – Dr. Nagwa Abdel Meguid, MD, PhD |
9:30 AM | Phenotypes and potential therapies in Fragile X syndrome and Autism- Prof. Flora Tassone, PhD |
10:00 AM | Using Patient Advocacy to bridge the gap between services provided and services desired – Robert Miller – Director of Clinic & International Relations National FX Foundation |
10:30 AM | Break |
11:00 AM | 20-minute talks (To be posted soon) |
12:00 PM | Lunch |
1:00 – 2:00 PM | Poster Session |
2:15 – 3:00 pm | Closing Remarks |
Keynote Speaker
12 May 2026 – Day 3
Clinics Day
Dedicated to clinical practice and direct patient care. Participants engage in specialized consultations and genetic counseling sessions focused on diagnosis, management, and family-centered care, supporting practical application through individualized clinical discussions and expert guidance.
- NRC Clinics
- Starts from 09:00 AM
Time | Session |
9:00 AM – 1:00 PM | Consultations: Dr. Nagwa Abdel Megid, Dr. Randi & Robby Miller Genetic Counselor: Susan Howell
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Keynote Speaker
Keynote Speaker
Are You Ready?
Join a global community shaping the future of neurodevelopmental research, care, and advocacy.