Robert M. Miller
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Director of Clinic & International Relations, National Fragile X Foundation
Robert M. Miller
For more than five decades, Robert M. Miller has worked closely with families who have a child or children with special needs, as well as the professionals supporting them.
He is particularly interested in how families access meaningful information and services from competent professionals, organizations, and institutions. This focus led him to co-found the Fragile X Clinical & Research Consortium.
Over the past 25 years, he has helped develop Fragile X parent support organizations and clinics around the world. He has been active in the Fragile X field since 1999 and currently manages the International Training Program in Neurodevelopmental Disabilities at UC Davis MIND Institute in Sacramento, California.
Academic Highlights :
Experience in Special Needs & Fragile X
Developing Parent Support Programs Globally
Active in Fragile X Research & Training
Mr. Miller Talk
Using Patient Advocacy to Bridge the Gap Between Services Provided and Services Desired
In this talk, Mr. Miller will highlight practical strategies to strengthen patient advocacy for children with neurodevelopmental conditions. Despite advances in healthcare delivery, a gap remains between the services patients receive and the care they truly need. This session provides insights for professionals, caregivers, and families to better bridge that gap.
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Audience
Physicians, therapists, educators, researchers, and caregivers.
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Gap
Bridging the difference between services provided and those truly needed.
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Advocacy
Essential components for effective patient support.
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Case Study
Fragile X Foundation as a model.
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Adaptable
Strategies applicable across neurodevelopmental.
Are You Ready?
Join a global community shaping the future of neurodevelopmental research, care, and advocacy.